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Rare Disease Day
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81	PDF Document Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2015-01-07 15:11:36 Rare disease Rare Disease Day Chronic Patient advocacy Health care Canadian Organization for Rare Disorders European Organization for Rare Diseases Medicine Health Epidemiology
82	ICORD 2014 Conference Program * = Joint sessions Day 1 (Tuesday, October 7, [removed]:00-11:00 Session I: Opening and Plenary Lectures. Policies: The main steps for recognizing the societal value Add to Reading List Source URL: icord.se Language: English - Date: 2014-10-02 15:21:33 Istituto Superiore di Sanità Science and technology in Italy Rare disease Orphan drug European Organization for Rare Diseases Pharmaceutical industry Health Pharmaceutical sciences Science
83	Rare Disease Day 2015 Theme & Slogan Theme: Living with a Rare Disease Slogan: Day-by-day, hand-in-hand! 2015 marks eight consecutive, successful years of Rare Disease Day. Continuing the momentum, Rare Disease Day 2015 Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-10-21 02:16:00 Medical terms Rare diseases Rare Disease Day European Organization for Rare Diseases Chronic Caregiver Amyotrophic lateral sclerosis Disease Center for Managing Chronic Disease Health Epidemiology Medicine
84	Rare Disease UK response to Equity and Excellence: Liberating the NHS About Rare Disease UK Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who support them. We have over 550 registe Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2010-12-01 06:59:46 NHS England Rare Disease Day National Institute for Health and Clinical Excellence National Health Service Healthcare in England Health Rare diseases Genetic Alliance UK
85	EUROPLAN National Conferences Template for CONFERENCE FINAL REPORT Writing a clear Final Report is as important as the flawless execution of the National Conference on Rare Diseases. Report writing is an essential elemen Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-04-08 06:32:49 Epidemiology Medical informatics Demography Health economics Rare disease Disease registry Genetic Alliance UK Chronic Rare Disease Day Medicine Health Medical terms
86	State House Sample Press Release FOR IMMEDIATE RELEASE Rare Disease Advocates Commemorate Worldwide Awareness Day at the (STATE) State House (CITY, STATE, DATE[removed]Join rare disease patients, caregivers and other healt Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 11:49:41 Rare Disease Day Medical terms European Organization for Rare Diseases National Institutes of Health Rare diseases Disease Patient advocacy National Organization for Rare Disorders Global Genes Project Health Medicine Epidemiology
87	SAMPLE RARE DISEASE DAY PROCLAMATION Whereas, there are nearly 7,000 diseases and conditions considered rare (each affecting fewer than 200,000 Americans) in the United States, according to the National Institutes Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 12:10:20 Rare Disease Day Medicine Disease Knowledge Genetic Alliance UK Non-communicable disease Epidemiology Rare disease Health
88	RARE DISEASE DAY 2015: SAMPLE LETTER TO THE EDITOR (This is intended for local or regional newspapers. If you want to submit a letter to a national newspaper, you should write one that can be submitted as an exclusive. Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 11:49:40 Rare disease Disease Medicine Epidemiology Health Rare Disease Day
89	Template letter to National policy makers Re: Call for a European Year for Rare Diseases 2019 Dear [insert name], [insert name of your association] is a [patient organisation / association] that currently represents … Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-09-18 06:59:23 Medical terms Rare disease Health economics European Organization for Rare Diseases Chronic Public health Disease Rare Disease Day Neglected tropical disease research and development Health Medicine Epidemiology
90	EURORDIS Call for a European Year for Rare Diseases We, rare disease patient representatives from more than 600 patient groups, on behalf of the 30 million people affected by rare diseases in Europe, hereby call upon the Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-10-02 03:27:16 Medical terms Rare diseases European Organization for Rare Diseases Orphan drug Disease Chronic Rare Disease Day Greek Alliance of Rare Diseases Health Medicine Epidemiology